There is indeed no such test for these patients. Yet, evaluation tools should be ready when the trials start.
To verify the reproducibility and reliability of measurements, the full battery of tests is repeated over four visits: V1 and V2 at least 30 days apart (it is possible to make these two visits in the same day), V3 six months later then V4 after 12 months.

 

What happens specifically during a visit?
Each participant tests 1-5 tools (depending on the capacity of each). First, one has to tighten the Handgrip handle, then pinch with the thumb and forefinger with the Pinch, and then we measure the strength of the wrist with Myowrist. We will then ask the participant to alternately touch as quickly as possible with their fingers the two Moviplate cylinders, a tool specially designed at the Institute of Myology for non-ambulatory NM patients (everyone can try to beat his previous score). Finally, we conclude with Taping, which involves typing as many times as possible with the index finger on the sensor.
In addition, during the first visit, participating patients respond to a questionnaire relating to the use of the hand and perform functional exercises (MFM). For patients, the battery of tests lasts between 1-1 ½ hours, according to the visits; for healthy subjects who only test the tools, the session lasts 45 minutes.